Blog archive: June 2018

IAQ 2 - What is the deal with Izzy’s breathing, and what are all these different types of oxygen you talk about?

17 June 2018 | Tamsin Kingsley

This is a hard one to answer as we are still not sure why she struggles so much with breathing. Izzy has frustrated our respiratory consultant from day one. He’s always very keen for surgeons to have a look down her throat, and always disappointed when they don’t find anything particularly exciting. He wants to fix her but it’s hard when we don’t really know what the problem is...

IAQ 1 (Infrequently Asked Question 1) - Do you have extra doctors appointments and stuff?

8 June 2018 | Tamsin Kingsley

I do it myself more often than I’d like to admit. Nod along to a conversation that is going completely over my head. Either the subject matter is one of the many embarrassing holes in my general knowledge, or it’s a subject that’s so close to the heart of the ‘talker’ that they forget to explain fully in a way that someone else can understand. I worry that I sometimes make that mistake myself when talking about Izzy and our life as it is now. Maybe I have an overactive imagination...

Tamsin Kingsley

I am a 33 year old living in Leeds with my husband and two children. I am a full time mum and carer to Lauren, 7 years and typical, and Izzy, 5 years with Down's Syndrome. Izzy has complex health needs mostly due to her low muscle tone, and struggles with feeding and breathing, resulting in tons of appointments and hospital admissions. Both children are happy and full of life, and our family all love each other very much.

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