Over the past 5 years I’ve experienced more challenges in my life than ever before following the birth of our second daughter who has Down Syndrome and various health issues. Our friends and family have been amazing but I know sometimes they wish they knew more about what’s going on and how we feel about it. So for them, this should give some insight. For anyone else who finds this, I hope it is helpful in some way, whether you are going through a similar situation or not. I won’t only write about Izzy, but she is what has inspired this blog, having brought some wonderfully sweet and sharp lemonade to our lives.
Tubie or not tubie: Izzy’s tube feeding story
16 November 2022 | Tamsin Kingsley
Last Saturday Izzy had her gastrostomy button removed from her tummy. It’s not a big procedure, was done at home and just left a small hole that will hopefully heal up by itself. However, for Izzy and us as a family it is hugely significant. Izzy has had a feeding tube since a few hours after birth, when her first ng tube was inserted on the neonatal ward.Continue reading...
Sharing my experiences with student midwives
20 January 2021 | Tamsin Kingsley
Hi, I’m Tamsin, and I’m really excited to be able to share some of my family’s story with you this morning. I live with my husband Dan, and our two girls, Lauren and Izzy. Lauren is 5, and Izzy is nearly 4. Lauren is super crafty, loves colouring and all things unicorn and princess. Izzy most loves dancing, being outside, jumping in puddles and playing on the swings, she also happens to have Down Syndrome.Continue reading...
Makaton - a lifetime game of charades
7 February 2020 | Tamsin Kingsley
Before Christmas Dan did his advanced Makaton training, and was surprised at the blank looks he got from friends and colleagues when he explained where he’d been. When you become immersed in a new world of all things disability related, it can be a shock to realise how different your life has become to before and to that of your friends. So Dan has asked me to do a blog about Makaton signing, which has become a huge part of our life, as Izzy’s primary form of communication...Continue reading...
What’s the deal with specialist schools?
19 October 2019 | Tamsin Kingsley
At the start of this term my Facebook feed was bombarded with photos of small people outside front doors in shiny new school uniform. Despite me still believing I have two babies, the time for us to think about school is creeping ever nearer, and it’s a minefield! Although not yet starting school until next year...Continue reading...
Our neonatal experience
29 May 2019 | Tamsin Kingsley
A few months back a friend of mine had a baby who was poorly and ended up on neonates. I was in text contact with her and as I tried to offer help and advice (probably totally unsuccessfully) a lot of memories and feelings came flooding back from my own time with a baby there. Many of these memories I hadn’t thought about since the time, so I thought it would be good to commit them to paper (or you know, a virtual cloud somewhere), as an important part of the lives of my whole family...Continue reading...
I am a 33 year old living in Leeds with my husband and two children. I am a full time mum and carer to Lauren, 7 years and typical, and Izzy, 5 years with Down's Syndrome. Izzy has complex health needs mostly due to her low muscle tone, and struggles with feeding and breathing, resulting in tons of appointments and hospital admissions. Both children are happy and full of life, and our family all love each other very much.
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