IAQ 2 - What is the deal with Izzy’s breathing, and what are all these different types of oxygen you talk about?

17 June 2018  |  Tamsin Kingsley

This is a hard one to answer as we are still not sure why she struggles so much with breathing. Izzy has frustrated our respiratory consultant from day one. He’s always very keen for surgeons to have a look down her throat, and always disappointed when they don’t find anything particularly exciting. He wants to fix her but it’s hard when we don’t really know what the problem is...

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IAQ 1 (Infrequently Asked Question 1) - Do you have extra doctors appointments and stuff?

8 June 2018  |  Tamsin Kingsley

I do it myself more often than I’d like to admit. Nod along to a conversation that is going completely over my head. Either the subject matter is one of the many embarrassing holes in my general knowledge, or it’s a subject that’s so close to the heart of the ‘talker’ that they forget to explain fully in a way that someone else can understand. I worry that I sometimes make that mistake myself when talking about Izzy and our life as it is now. Maybe I have an overactive imagination...

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How I’ve managed to cope so well!

26 April 2018  |  Tamsin Kingsley

Something we hear a lot is people telling us how well we are coping. If I question this, it is usually followed up by something like ‘oh but you are, you’re doing so well/ I would be a complete mess in your situation/ I don’t know how you stay so strong’. Obviously, everyone means to be supportive and positive which I really appreciate, and often this has been a great encouragement. The strange thing is that I have been told how well I am coping both when I’m feeling...

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Did you know?

10 April 2018  |  Tamsin Kingsley

Down Syndrome. I sometimes feel this is the elephant in the room when I’m out and about with Izzy. Very few people mention it in conversation with me, and if I bring it up people can look a bit awkward or uncomfortable (I exclude my close friends and family from this). Perhaps they don’t see it as worth mentioning, since they just see my beautiful baby girl as being like any other child, albeit with a few health issues. Perhaps they don’t really know what to say...

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Winning the Genetic Lottery

21 March 2018  |  Tamsin Kingsley

I know I said this blog wouldn't be all about Izzy, but there's no denying that when she entered our lives ten months ago, our world was turned upside down. So many of you have been such an amazing help and support during this time, and I thought you might want to hear how our journey with both Izzy and Down Syndrome began. And what better day to tell you about it than on World Down Syndrome Day...

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Tamsin Kingsley

Tamsin Kingsley

I am a 30 year old living in Leeds with my husband and two children. I am a full time mum and carer to Lauren, 4 years and typical, and Izzy, 2.5 years with Down's Syndrome. Izzy has complex health needs mostly due to her low muscle tone, and struggles with feeding and breathing, resulting in tons of appointments and hospital admissions. Both children are happy and full of life, and our family all love each other very much.

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