Blog archive: November 2022

Tubie or not tubie: Izzy’s tube feeding story

16 November 2022 | Tamsin Kingsley

Last Saturday Izzy had her gastrostomy button removed from her tummy. It’s not a big procedure, was done at home and just left a small hole that will hopefully heal up by itself. However, for Izzy and us as a family it is hugely significant. Izzy has had a feeding tube since a few hours after birth, when her first ng tube was inserted on the neonatal ward.

Tamsin Kingsley

I am a 33 year old living in Leeds with my husband and two children. I am a full time mum and carer to Lauren, 7 years and typical, and Izzy, 5 years with Down's Syndrome. Izzy has complex health needs mostly due to her low muscle tone, and struggles with feeding and breathing, resulting in tons of appointments and hospital admissions. Both children are happy and full of life, and our family all love each other very much.

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